Sylvia contacted me through connections on Facebook, she wanted to know if I would be interested in doing an interview with her. She is a landscape architect who is investigating how the built environment, specifically public spaces, can better support people with invisible chronic illnesses like Lyme disease. She also hoped to understand how living with a chronic illness impacts the way we navigate places.
The interview was an informal and open-ended phone interview which was recorded by both of us. She wanted to hear my story; How living with chronic Lyme has impacted my experience of the built environment, and what kinds of places provide comfort and healing for me. Her goal is to use findings from the interview to inform a set of design guidelines for creating restorative/healing spaces for people with invisible disabilities like chronic Lyme. Attached are part 1 and part 2 of the interview we did last year. Please contact me if you would like to hear the entire interview or see my YouTube page.
https://www.youtube.com/channel/UCZZFHgwF_hoUvCr1Fe5nQNQ?view_as=subscriber
*The Good News* Silvia has since been working with a computer scientist to design an app that applies the findings from the previous project she interviewed me for, mentioned above. The app is designed to help people with chronic illness navigate public outdoor spaces. They developed a prototype and would like to see if it can be useful to people who live with complex chronic diseases like Lyme.
Sylvia reached out yet again to see if I would be interested in participating in a user study interview for the app, since my input in the previous study played an important role in its development!
More to follow on the app interview and the app itself!
The videos below were filmed February of 2019. Just two random in no order